Tag Archives: ASC

Weighing in on Jerry Seinfeld’s comment that he maybe on the Autism Spectrum

Seinfeld recently revealed that he thinks he is on the Autism Spectrum in an interview with Brian Williams on NBC’s ‘The Nightly News’. When asked about why, he said that he is ‘never paying attention to the right things, basic social engagement is really a struggle. I’m very literal. When people talk to me and they use expressions, I don’t know what they’re saying‘.

While his revelation may seem positive because of his acceptance of this possibility, I believe that his explanation of the ‘markers’ shows how limited his understanding of Autism is. Sure, he did not shy away from admitting that he may have Autism – a way of saying that having Autism is not a bad thing, but his description is deeply problematic.

His description is a negative one- it included what could be wrong or what one may see as ‘dysfunctional’ in people with Autism. I have always believed that while it is important to acknowledge what people cannot do, it is more important to highlight and focus on what they CAN DO. In addition, the seemingly negative things that he outlined can be seen as positives. ‘Never paying attention to the right thing’ all depends on what one thinks ‘right things’ are. In my experience, people with Autism are exeptionally brilliant at focusing on fine details – the ones that people without Autism cannot see.

Social engagement is not always a struggle. Again, this depends on who is interacting with the person with Autism. Having an open mind goes a long way. Also, I have met people with Autism who have more confidence in public speaking than me.

Being literal, or not understanding sarcasm or implied meaning in language may be seen as a weakness, but trust me, this skill can be taught. The same goes with expressions.

My other issue with Seinfeld’s description is the lack of acknowledgement that people with Autism differ from one another. If you’ve met one person with Autism, you’ve met one person with Autism.

While it may seem like I am attacking Jerry Seinfeld, please be assured that I am not. I just want to explain the improtance of being aware of the complexities and the positives of having Autism. More often, I speak with people who only know how to describe Autism by outlining the negative behaviours and the things they cannot do. I think it’s time to stop that trend. I want us to focus on what they can do and what is great about having Autism.


Autism LinkFest

Autism: How new therapies are helping people with ASC – find out newly developed therapies that may help people with the condition. Be aware that not all of these therapies have been evaluated!

Food, clothes, transport, beds and ovens: the aid schools are giving UK pupils – poverty is everywhere. Schools find it difficult to ignore the signs of poverty in students, and are doing the best they can to help.

Girls and Autism – How does Autism affect girls and what can be done about it?

Preparing for Halloween – how can we prepare people with Autism for halloween?

I am not Kelli Stapleson – a brilliant piece written by a mom with unconditional love for her child

What can be done for adults with Autism? – there are not a lot of studies, provisions or help available for grown ups with Autism. The system seems to forget that kids with Autism grow up to be adults with Autism. What can be done?

Please help this young boy with Autism

A mother and his son in Australia is seeking help as they are about to be deported on the sole basis of his son having Autism. The boy’s mother, Maria is a nurse who have lived and worked in Australia since 2007. Upon applying for a visa renewal, the government denied her as her son, who has Autism, is deemed to be a burden to the health care system. (Click HERE to read more on their story)

Please help them by signing this petition. Please.


It’s Not Work, It’s My Purpose

Today’s Daily Prompt Asks: If money were out of the equation, would you still work? If yes, why, and how much? If not, what would you do with your free time?

I am an educator, education researcher and a campaigner for Autism Awareness and Acceptance. I am very proud of what I do and I do not consider it work. I may not be the best at what I do, but I am stiving to be better at it all the time. The passion that I have stems from my interactions with the children and their families. A lot of what I already know has been passed on by experienced mentors who themselves are as passionate as I am with their cause. Despite the hard work, countless sleepless nights and the relatively small pay, I would not trade it for anything else. 

If there is a chance for me to stop working for a living, I would do what I am doing voluntarily. That is how passionate I am with what I do. I believe that I am making a difference in people’s lives, albeit in a small capacity. But if we are to change the world for the better, every little effort is needed.


The Reason I Jump: One Boy’s Voice from the Silence of Autism

The Reason I Jump

I have just bought this book from Waterstones today.The Reason I Jump: One Boy’s Voice from the Silence of Autism is a book written by Japanese writer Naoki Higashida, who himself has been diagnosed with Autism. Naoki wrote this book in 2005 when he was 13, and was only published last year. I have read the reviews which seem to be mixed. On the one hand, it is being praised as it shows the positive side of having Autism and the book is in-line with parents’ hopes for their children who are on the Autism Spectrum. However, some are critical as they argue that Naoki does not speak for all of those who have Autism.

I have not yet read it, but I am very excited to start. No need to ask me what my weekend plans will be!!

Bring Stephen Home

Today’s Daily Prompt: Remember those lovely genies who grant wishes? Well, you’re one and you’ve just been emancipated from your restrictive lamp. You can give your three wishes to whomever you want. Who do you give your three wishes to, and why?


My friend Leo Andrade-Martinez has launched a campaign to bring her son, Stephen (19) closer to home. Stephen is currently at a psychiatric ward in St Andrew’s hospital in Northampton which is 80 miles away from his (and Leo’s) home in Islington. Here is Leo’s petition (please click HERE to sign it):

I want my son out of a mental health unit and to be near his family. We have to travel hundreds of miles each weekend to see him and sometimes we only see him for a few minutes; sometimes it’s not even that.

Firstly, Stephen was at Acorn Park Residential School in Norfolk for two years.

Last year in February Acorn Park told us that they could no longer provide care for Stephen resulting in us only having 2 weeks to find Stephen a new placement. There was none to be found in that short period of time.

Therefore Social Services told us that the best place to put my son would be at St. Andrews. We were assured at the time that it was an autism unit. We were also told medications would be stopped along with a special diet, psychological intervention and therapy being put in place.

Needless to say none of this happened.

He was put in a self-harming ward, not an autism specialist unit. It also turns out that they do not have an autism unit for over 14s, so he was placed with drug addicts, alcoholics and god knows who else.  There are no late teens in his ward.

All individuals on the ward are aged over 25 to late 40s; the place gives me the creeps.

Stephen is locked up 24:7. If my son is not having a good day or is unsettled they won’t take him out into the grounds, this is a huge space which Stephen would love. He goes for weeks and months without going outside into the grounds. For the past 15 months he has not been taken out into the community.

His social life is non-existent. If Stephen has a meltdown 4 to 5 people jump on him to restrain him. Sometimes this is up to 5 hours.

We travel for 1.5 to 2 hours depending on traffic and if Stephen is having a bad day they will not bring him downstairs. We either have to go upstairs and sit with him in a crowded office room, with only one parent present as we have our little boy Joshy with us; children are not allowed into the building. What is even worse is that we sometimes travel all the way to visit him, only to be told that we are not allowed a visit.

I know that Stephen is very unhappy there, although the staff appear to be generally friendly and appear to be nice people, I don’t know any of them by name and it’s always a different person on duty, Stephen hates that. I think it is difficult for them as they have no knowledge about autism and because of this can make you feel guilty for your child’s behaviours. My son still talks about Norfolk and asks for his old carers by name one by one, I actually feel the same way about them as they were amazing. It breaks my heart when he says, “mummy, Ste go home with mummy. Ste no here”, that’s how he speaks. He gets very sad as we are about to leave.

So what do we want for Stephen? We want him out of the Mental Health Act. We want him to leave St. Andrews which should not be a problem as they agree that the hospital is not the correct setting and environment for him. We were told back in February that we needed to find Stephen a long term Autism Specialist Residential placement.

However Islington Adult Social Services are not helping and have made no attempt to find a solution.

So a month ago I was extremely upset, why haven’t they tried? A new social worker came out to see us and said that they thought my son should go “one step down the hospital”, whatever that means!  I said no. What is it that they are going to do that St. Andrews could not?

Their answer was to say, “Leo keep an open mind.”

Their broker has found two possible placements, but again nothing has been done about this so far and she has now retired. Tom emailed me to say that the London hospital is going to approach St. Andrews to do an assessment, however I am not convinced. The only good thing is that it’s a London tube ride to that hospital, but still I don’t want Ste to go there.

So now to Living with Autism and their possible placement, it sounds a good place, it sounds it might suit him, but I have reservations because it’s in Lincolnshire which is even further then Norfolk and Northampton.

The good thing about this though is that Islington thinks it’s too far, so far so good, but yet they themselves have no further ideas and of course they told me they don’t want an outsider like Living with Autism to find the placement. I am not sure what to think of that.

We of course want Stephen to be nearer us so that we can visit more often but of more importance is that we want Stephen to have a better quality of life, this is his basic human right. Being in a psychiatric hospital means that he is mostly locked up, he is not allowed out into the wider community and this means that as a young man with severe autism his human rights are not being met, in fact thy are being violated.

I don’t want my son to be in a mental institution. My son and so many other sons and daughters are put way in these horrible places and drugged up, without so much as an offer of  help or therapy. My son is not mentally ill, he is autistic.

So I call on the NHS, Social Services and the Prime Minister to stop this horrible situation that we all find ourselves in. I don’t want to see another parent suffering like me, not being able to see my son when we visit.

We also call for Section 3 of the Mental Health Act to be changed so as to give autistic people more freedom and not to be treated as mentally ill.

So to conclude, what do we feel we want for Stephen? We want a placement in a rural area with a country feel to it, like Hertfordshire or London Barnet Potters Bar, but this is no easy task.

Ideally we want the placement to be within 35 to 40 miles, so that we as a family can be close to him and see him more often. We are not asking for much.

Please help my family but most of all help my son.


If I were to become a genie, I would grant my friend Leo’s wish straight away. You can also do so by signing her petition and spreading the word. Please click HERE.






















High Rates of Autism found in Children of Mothers born in the Philippines, Vietnam, Central and South America

A recent research conducted by Becerra et al. (2014) has found that children whose mothers were born in the Philippines, Vietnam, South and Central America, and Africa were more likely to be diagnosed with Autism compared to the children of US-born mothers. The research revealed that 7,540 children who were born in Los Angeles County between 1995-2005 were diagnosed with Autism. Compared with children of US-born mothers, the risk being diagnosed with Autism is 76% higher in children of African-born mothers, 43% higher in children of Vietnamese mothers, 26% higher in children of Cntral and South America, and 25% higher in children of Filipono mothers. The researchers have also found increased risks of mental retardation coupled with Autism in the children of foreign-born mothers.

Becerra et al. (2014) suggested that there could be a number of factors that could cause the trend that has been found including highly stressful experiences by the mothers, exposure to viruses, trauma or violence. However, they acknowledged that more research should be done in order to investigate different factors that could affect immigration, and identification and diagnosis of Autism.

Autism Costs Higher than Cancer and Heart Disease

Autism is a neurodevelopmental condition that affects individuals’ physical behaviour, communication and social skills. Recent figures published by Autistica stated that the UK spends £32bn a year, which is higher than heart disease (£12bn) and heart disease (£8bn). This £32 billion is a calculated fugure based on what is spent on treatment, care and support, as well as people’s loss of income as a result of being on the spectrum and/ or living with someone who has Autism. Autistica’s report also highlighted the importance of developing better interventions that are effective in order to make better use of resources that are scarce.

It should be pointed out that the figures have also revealed that there is very little money spent on Autism research compared to care. On average, only a mere £180 is spent on research for every £1 million spent on care. That is £6.60 per person spent on research. This clearly needs to change as effective interventions should be developed and evaluated as latest figures show that over 600,000 people in the UK have Autism.