New study Suggests that Delayed Diagnosis of Autism in Girls May be Due to Less Severe Symprtoms

Researchers from the Kennedy Krieger Institute in Baltimore, MD found that girls may present less severe symptoms of autism spectrum disorder than boys, causing them to be diagnosed with the condition later.

“The researchers identified differences in symptoms between boys and girls. They found girls struggled more with the ability to interpret social cues, while boys were more likely to demonstrate “severe mannerisms,” including repetitive behaviors such as hand flapping. Boys were also more likely than girls to have limited interests.

Older boys aged 10-15 were more likely than girls of the same age to struggle with social cues, however, and have difficulties with language in social situations.”

Read the full article from Medical News Today HERE

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Rosie King’s TEDMED talk about her Autism

A Professional’s Guide to Talking About Autism

Talking about Autism in  professional contexts should be done with utmost sensitivity and respect towards the individuals with the condition and their families. Having sat through assessments, consultations, education and health care meetings, annual reviews and planning meetings with familes and professionals, I have learned lessons of what to do and what not to do when it comes to talking about the said subject. I am aiming, through this article, to share with you what I have learned over the years.

1. It’s not an epidemic and no one is ‘suffering’ from Autism

Despite what the figures suggest, I do not consider Autism as an epidemic – it has been around for longer than we all think and we just got better at identifying it.

I would try to avoid using any negative terms at all when talking about Autism. Someone HAS Autism, but he/ she is not suffering. I prefer to call Autism as a condition, not a disorder or a disease.

Please note that I do not want you all to turn a blind eye on the difficulties that the individuals and their families are having at any point. Absolutely not! I urge you to acknowledge that. What I want you all to understand is that whatever it is that is happening now can be changed. Focus on what can be done (realistically) to make their situations better.

2. Individuals with Autism; not Autistic individuals

The jury is still out with this one – some actually want to be identified as ‘autistic’, as it is a major part of their identities, while some would like to be referred to as (for example) ‘a girl with Autism’. I always use the latter one, unless corrected by the individual or the family. I feel that by referring to them as ‘individuals with Autism’, I am acknowledging that there is more to them than having a diagnosis – that Autism is only a part of who they are. By doing so, I believe that I am opening up the opportunity for others to truly discover who the person really is as a whole.

3. Avoid using ‘High/Low Functioning’ and ‘severely/mildly Autistic’

I myself am guilty of this until recently. First of all, I know that levels of functioning depends (in a large part) on the individual’s IQ score. However, I began to understand that IQ is only a part of who they truly are.

I understand that levels of functioning may give professionals and parents a common language/ reference point to which they can base an individual’s set of abilities. But I feel like this should be avoided as it is misleading. I have met many people with Autism who have overall IQs of less than 70 but are amazing in specific things. One may be ‘low functioning’ but it does not mean that they cannot (or are not) good at something.

What I find helpful is to look at the overall picture. Try to understand every context, every behaviour, every aspect of the individual’s life. Then, if you need to talk to the individuals with Autism and/ or his/ their families, you should pinpoint the areas in which they have strengths and the areas in which they need to improve. Not only will you be able to offer a much better informed solution (if that’s what’s needed), you may also make the families feel that they were listened to.

4. SHUT UP AND LISTEN!

As professionals, most of us are eager to offer advice. But having spoken to a lot of families over the years, what they appreciate is being listened to – genuinely and empathically. I advise you to take a step back and listen to what they are saying before speaking or making your mind. Clarify what you heard and don’t be afraid to ask questions to ensure that you truly understood what they meant.

5. No two individuals with Autism are the same

I know that you all may have read/ heard this before, but I want you to always keep this in mind. No matter how many people with Autism you have met, the next one would be completely different from the others. Never assume that you already know what to do. I suppose if you want to stay true to this advise, you would follow number 4.

Final comments

All of what I have said may not be a unique revelation to many of you. However, I feel like I owe it to the Autism community to remind you (and myself) of all of them. I know that we all want the best for the people we work with, which is why I am confident that the Autism community is in safe hands.

Please feel free to contact me and/ or leave comments if you wish to discuss anything further.

 

A Story That Needs to Be Told: Stephen Andrade-Martinez

Click HERE to watch Stephen’s story.

“Stephen has Autism, and has a history of displaying behaviour that challenges. Living at home with his parents and 2 siblings, his family were able to manage Stephen’s behaviour by implementing Positive Behavioural Support. When Stephen left the family to go to School his behaviour deteriorated and he was sent to a hospital, which has now become his permanent home.”

Stephen’s mum, Leo wants him back home. He is currently stays at a Psychiatric Ward 24/7. He is not getting the support and affection that he needs- both of which his parents are able to provide. Leo is campaigning to bring Stephen home. Help her by signing her petition HERE

The Best Definition of Autism in the Internet

There are a lot of definitions of Autism around in books and on the internet. But none, including mine, has captured the whole essence of Autism- from its nuances to the best available research evidence and observational data- better than Nick Walker’s.

Click HERE to read it.

What do you think?

Does your definition of Autism differ to his? Let me know!

Weighing in on Jerry Seinfeld’s comment that he maybe on the Autism Spectrum

Seinfeld recently revealed that he thinks he is on the Autism Spectrum in an interview with Brian Williams on NBC’s ‘The Nightly News’. When asked about why, he said that he is ‘never paying attention to the right things, basic social engagement is really a struggle. I’m very literal. When people talk to me and they use expressions, I don’t know what they’re saying‘.

While his revelation may seem positive because of his acceptance of this possibility, I believe that his explanation of the ‘markers’ shows how limited his understanding of Autism is. Sure, he did not shy away from admitting that he may have Autism – a way of saying that having Autism is not a bad thing, but his description is deeply problematic.

His description is a negative one- it included what could be wrong or what one may see as ‘dysfunctional’ in people with Autism. I have always believed that while it is important to acknowledge what people cannot do, it is more important to highlight and focus on what they CAN DO. In addition, the seemingly negative things that he outlined can be seen as positives. ‘Never paying attention to the right thing’ all depends on what one thinks ‘right things’ are. In my experience, people with Autism are exeptionally brilliant at focusing on fine details – the ones that people without Autism cannot see.

Social engagement is not always a struggle. Again, this depends on who is interacting with the person with Autism. Having an open mind goes a long way. Also, I have met people with Autism who have more confidence in public speaking than me.

Being literal, or not understanding sarcasm or implied meaning in language may be seen as a weakness, but trust me, this skill can be taught. The same goes with expressions.

My other issue with Seinfeld’s description is the lack of acknowledgement that people with Autism differ from one another. If you’ve met one person with Autism, you’ve met one person with Autism.

While it may seem like I am attacking Jerry Seinfeld, please be assured that I am not. I just want to explain the improtance of being aware of the complexities and the positives of having Autism. More often, I speak with people who only know how to describe Autism by outlining the negative behaviours and the things they cannot do. I think it’s time to stop that trend. I want us to focus on what they can do and what is great about having Autism.

Employ People with Autism or Miss out!

Autism LinkFest

Autism: How new therapies are helping people with ASC – find out newly developed therapies that may help people with the condition. Be aware that not all of these therapies have been evaluated!

Food, clothes, transport, beds and ovens: the aid schools are giving UK pupils – poverty is everywhere. Schools find it difficult to ignore the signs of poverty in students, and are doing the best they can to help.

Girls and Autism – How does Autism affect girls and what can be done about it?

Preparing for Halloween – how can we prepare people with Autism for halloween?

I am not Kelli Stapleson – a brilliant piece written by a mom with unconditional love for her child

What can be done for adults with Autism? – there are not a lot of studies, provisions or help available for grown ups with Autism. The system seems to forget that kids with Autism grow up to be adults with Autism. What can be done?

Kelli Stapleton: the mum who tried to kill her daughter who has Autism

Is it right for people to assume that attempted murder is alright just because the victim has Autism? Of course not! Read more HERE

Please help this young boy with Autism

A mother and his son in Australia is seeking help as they are about to be deported on the sole basis of his son having Autism. The boy’s mother, Maria is a nurse who have lived and worked in Australia since 2007. Upon applying for a visa renewal, the government denied her as her son, who has Autism, is deemed to be a burden to the health care system. (Click HERE to read more on their story)

Please help them by signing this petition. Please.